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Hello Brains! 

It looks like we may need a few more quotes relating to time based struggles. Please be sure to fill out this form so that we can make this process as quick as possible, if you'd like to help us out here! 

We credit using first name, last initial. How would you like to be credited? (It can be a false first name and/or last initial for privacy!) 

We credit using age. How would you like your age to appear? (It can be different from your actual age for privacy!) 

We credit using location. What location would you like? (It can be as broad as your country and as narrow as your city! We leave it to your discretion.) 

If we use your quote, do we have consent to edit down your quote for length without needing to get further approval from you?

And finally... how are some ways you communicate your time-based struggles? How have you asked for time-based accommodations? What are some of the accommodations you've asked for? 

It's been a blast getting to see all the different ways you all have been answering these throughout the course of this book! 🧡 We are so so so so grateful for getting to hear and use your experiences in your own words and we want to thank each and every one of you for sharing!! 


Comments

Anonymous

Chase M, 59, Hawai‘i USA. Consent to use or edit. I use Siri on my HomePod, iPhone and iPads to keep me scheduled and on time. Try to set timers and alarms as much as possible as well as using the reminder features. When I'm getting ready in the morning, I will ask Siri at least half a dozen times "what time is it?".

Anonymous

When working on my thesis I asked my supervisor to give me "hard" deadlines. So instead of just meeting him regularly to show what I got, he gave me specific goals. (Like, you need to show me a full outline by this date, have this chapter finished etc.) (I didn't even have my diagnosis then, just knew by then very well that deadlines set by someone else were a must.) Full consent, 42 years old, Finland

Anonymous

Lisa G, Australia, full permission to publish, edit as required, etc etc. I've asked for (and received) permission to use timers and alarms in a small office setting. I use alarms to remind me to take a lunch break, medication, to remember when to ring home to remind my kids of things they have to do and when it's time to pack up to go home. Visual timers that count down with a disappearing wedge of colour are more useful for shorter deadlines. My boss knows about my issues with hyperfocus and my lack of time perception. He understands he can "treat me like a deaf person" if I'm in the zone and haven't noticed my reminders going off. Or if I have, but have promptly forgotten them again. I've also got permission to use a Discord pomodoro-style body doubling channel as needed - really useful when the others are out of the office or if I'm working from home, especially as I forget how long it's been since I got up and moved / stretched.

How to ADHD

What age would you like us to put down? :) It can be your true age or you can give a different one!

Anonymous

hi, I'm G. Lee, Melbourne, aged 66, undiagnosed but I think AuDHD, publish OK, edits OK. I have a system that works well for me but it's a 2-parter, and the 2nd part is based on privilege and luck. 1st part: a job that suits. I've had base-level work in factories, labs & shops, where the tasks were immediate and the time-keeping organised by machines or close supervisors. The work itself was boring but the responsibility for keeping track was not up to me which was soothing. Many years pass, now I'm PhD and researcher. This is where the privilege comes in: I'm self-employed and only get bits of work, so I have lots of time, I can set deadlines that suit me. Sometimes the deadlines get hard and I'm stressed, but I have time later to decompress. The privilege is, my partner has a good job and really supports my science even when it doesn't pay much, so my slow pace of work doesn't make me poor. I'm like some renaissance artist being sponsored by a Medici. In day-to-day strategies, I have to-do lists posted all around my desk, and it's way fun to crumple them up when they're done. I also regard my Piles Of Doom as physical to-do lists. Although maybe they're physical prioritisation tools? There's one near my right elbow that I haven't touched in 10 years, I think that's telling me something.

Anonymous

Tony Hunt No Age Niagara Falls, NY Edit as you see fit. I dont not work in term of schedules, as much as I work in terms of milestones, tasks, and deadlines. I do have things that happen on schedule daily, but where time constraints come up I explain that my process doesnt fit a set time schedule and its better to assign me task X and gove me a dealine than it is to simply say "work on this during your schedule"

Anonymous

Luca H, 26. Perth, Australia. You have my full consent to use and edit. I am an Architectural graduate, finishing last year. I had struggles throughout uni submitting assignments on time. These were mostly large semester-long assignments that required good time management skills to complete by the allotted deadline. During my undergraduate degree the late penalty was 5% a day, which I copped. I submitted most assignments 2-3 days late and was still able to land a reliable C grade. At the time I started my Masters degree however, my university briefly increased the penalty to 10%. I couldn’t take this so applied for special consideration. With this special consideration, I was allowed to apply for as many extensions as required to complete the assignment. This resulted in me submitting all of my postgraduate assignments at least a week late. The stress endured was similar if not more than I experienced during my undergraduate degree. Without a formal deadline, I built up a highly perfectionistic attitude towards my work which now makes completing tasks quickly at my job difficult. On reflection, I think this was a poor strategy by my university which has been detrimental to my productivity and therefore employability.

Jabberwocky (Jan H. H.)

Time is my kryptonite! And since I am German it often can really be an issue that for me time is flexible and with hyperfocus I can sometimes get lost in my own universe, whereas people around me perceive time as linear and a lot is organised according to linear time with specific points in time when things "need" to happen. One of my best friends is Spanish and always calls it "You're getting Spanish" when I'm running late for an appointment etc. In Spain on average time in a social setup is much more flexible as in Germany (see e. g. "The Culture Map" by Erin Meyer). Luckily today I'm more relaxed with this and also speak openly about it. When I know I got an appointment after lunch/ coffee I ask people I'm closer to if I could set an alarm to leave on time. I also use a timer with three times on it for meetings etc. in particular if I have to run them and get through my schedule (can be started all together if needed). Teleworking makes this even easier and less awkward. I do need a lot of planning though, to get it right as I have little feeling for how long something might take. It used to stress me out a lot, being able to open up and share my struggles helped me a lot in the last time. Feel free to use Jan H. H., diagnosed with ADHD (late at age 41), 43, The Hague and fine to edit this quote.

Angie

I find the current Neurotypical schedule-based work culture to be too restrictive and ineffective. Many workplaces feel they must have everyone on the clock and in the office for the same 8 hours each day so that everyone is available at all times to answer questions and interact, regardless of workflow. I would personally benefit from working at least 1-2 "off" hours when no one else expects to reach me to truly focus without interruption, because interruptions are especially detrimental to the ADHD brain. It seems like schedule accommodation, like offsetting the hours, has not been offered because managers don't trust employees to manage themselves without direct supervision -- we're seeing that with the articles about remote workers being forced back into the office. Managers could micromanage less if they trusted more. If they hire skilled people and provide them the expectations (boundaries) and the proper tools, employees do better. If they don't trust their employees to do the right thing (their jobs!), then they should address their trust issues through therapy and effective communication. Angie T | 42 | Missouri Full permission to use and edit as required

Parker

I’m late to respond. But just in case this resonates with anyone else… I need deadlines too. But I can’t focus if I’m too close to a deadline because I get so stressed out by them rushing towards me at warp speed that my brain will refuse to focus. So I’ve learned over the years (I’m 56) that I need to set myself a deadline that is at least a week earlier than the actual one. When I was an undergraduate it utterly mystified me how the students around me could stay up all night working on something that had to be handed in the following day. I am incapable of working under those kinds of time constraints. Before the cumulative effects of all the stress on my body made me too ill to work, I was a special ed teacher. I dreaded the end of year reports I had to write on every student. No matter how many timetables I planned out for myself, how many times I tried to force myself to spend x minutes every weekend for x weekends, I ALWAYS ended up in the same hyper focused intense pattern of successive 14 hour days in whichever was the last bit of vacation time we had before the reports were due. So I ended up going back to work exhausted and wrung out. Anxiety dreams about missed deadlines were the norm. I have to have EVERYTHING written down, in at least two places. Copious notes…epic to do lists…multiple notes stuck on everything around me…timers…alarms…multiple clocks so that I could see one wherever I was. Like others have mentioned I now find my smartwatch and ‘Alexa’ helpful. But even with them, they’re only ever effective for part of the day. Once I start to get too focused on something then I begin to totally ignore timers and alarms when they go off. I’m early for appointments - I work out using Google maps (or doing a practice run if it’s somewhere unfamiliar) how long a journey will take me. Add 30 minutes in case of traffic delays. Get EVERYTHING ready the night before so I don’t get sidetracked looking for something or adding something totally unrealistic to the time I’ve allocated to get ready. I double the time I think it will take me to get ready and plan out how long each part of the prep MUST take me. So, 30 minutes getting clean, 10 minutes to prepare breakfast, 15 minutes to eat and digest etc. CONSTANTLY checking the time on one of the multiple clocks…if it’s a social occasion I’m always late. Because I invariably think I have plenty of time to also get x, y and z done before I leave. I was frequently in work for hours after the school day ended. I’d look up at the clock and realise it was 6.30pm but I still hadn’t done whatever it was that I was staying late to do. I was always in every school I ever worked in, the last person there. I always got to know the custodians/cleaners/caretakers really well because they constantly had to pester me to pack up and go home. I never understood why I struggled with everything that other people seemed to breeze along doing easily. Until recently when my therapist mentioned ADHD. NEVER once in over 20 years of teaching did I recognise that I had many of the same traits as the children I helped to learn. I masked so well even I didn’t see them. I also didn’t realise what toll the stress of trying to cope with a world that didn’t seem to be functioning in the same way as I did was having on my body, and I’ve been chronically ill since 2007. It’s only with therapy that I’m recognising how much I’ve been a round peg trying to fit into a square holed world. - I never asked for accommodations because I thought it was just me failing to manage my time properly and over the years figured out some ways I could manage to conform despite those failings/flaws. The relief I feel now, knowing a little bit about WHY I struggle with this stuff is…incalculable. Parker. UK. 56yo If this isn’t too late to be helpful, permission to edit however you see fit.

Jennifer Levenbook

When I was in graduate school for my Master's Degree, my advisor told me I had no choice but to have hard intermediate deadlines. "You are going to hate me with each of these deadlines," she said, "But you are going to really love me at the end when you only have to polish and shine." And she was right. I looked at the other graduate students not spending hours in the library the night before an intermediate deadline getting material completed for turning in and seething silently. But at the end they were all stress and I had very little to do. If it hadn't been for that advisor, I possibly would have been diagnosed earlier (she accommodated all of her advisees, diagnosis or no). This was my first introduction to what I later learned is called Universal Design: it may be an accommodation for some but it is helpful for all. ~ Jen, 40, North Carolina