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Storms and Spasms (from Patron Dylan Thomas) (Patreon)

Published:
2018-02-25 20:58:31
Edited:
2018-02-26 20:59:01
Imported:
2021-04

Content

One of our followers / patrons, Dylan Thomas sent us over a video in which he shares some of the different Dystonic episodes that he deals with.  It was eye opening - before seeing this, we had no idea Dylan had such a condition. Hoping you catch this video, Dylan, and can send us a couple links for charities to donate to!!



Files

Storms and Spasms

Comments

Anonymous

Just Giving page: <a href="https://www.justgiving.com/elusiondystoniadwyfor" rel="nofollow noopener" target="_blank">https://www.justgiving.com/elusiondystoniadwyfor</a>

Anonymous

Thanks Guys 👍🏻

Anonymous

We had to video as visual evidence for anyone in medical services due to not understanding what happened as I get some doctors say I’m making it up!! I kid u fuckin not!!

Anonymous

I speak Welsh 🏴󠁧󠁢󠁷󠁬󠁳󠁿

Anonymous

Day to day I do need to use wheelchair, this all started in 2013 just look at my other videos where I tell my story the updated one it’s better coming from the horse’s mouth!! 🤣 I am classed as disabled and get welfare lucky I live in country that has Socialised Healthcare &amp; Community Care!!

David Gandy

Thanks for sharing guys! I've learned and am a better person. Bless you Dylan, thanks for sharing too.

Anonymous

Your reaction was funny as hell an I laughing because you both have the same sense of humour as I do that’s how I cope with it and I would watch a video of Greg on the John 💩💩🤪😳😤constipated!! 🤣🤣🤣There are many charities in the US as well?! If you were thinking of doing a video about donation it’s ‘DYSTAONIA AWARENESS WEEK’ between 04/29/18 - 05/07/18 and I my birthday is always within that week as well!!

thereelrejects
>>10387951

Aw haha, really glad you enjoyed it! Sorta figured our sensibilities can't be tooo different if you're here with us haha. Definitely gonna take a look back into some of your older videos - hear it from the horse's mouth as you said. Appreciate the heads up about Dystonia Awareness Week as well! Perhaps we'll plan out a li'l charity push in time with your BDay 😊

thereelrejects
>>10387868

Of course, man! I think we definitely learned some through this as well. Glad that this can be an open, personal space as well as a space for our usual hijinks. :)

thereelrejects
>>10387572

That's a relief to hear, at least! Our health system seems to leave a good amount to be desired these days 😣 Hoping we can catch up one'a these days soon haha. Just the same, we're shocked to hear some of the doctors thought you were faking - seems pretty insane, given what you've documented here. Thank god we've got cameras all over now, eh?

Anonymous

Haha 😂😂😂 It will the first since the days of Steve-O of Jackass fame!! Haha it’s Dystonia Awareness Week in the UK on those dates in the US it’s Dystonia Month in September me thinks!! I’m really grateful that u did a reaction and watch it in full some of my mates, friends or relatives can’t handle it!! I’m lucky that I have a Amazing parents 😀 Greg this has boggled me for a bit is Jaby your brother? ‘Alba’ is the Welsh for Scotland and Greg is Scottish Gaelic for ‘Rock’ unless it’s short for Gregory which is Greek for Glory!!

thereelrejects
>>10412133

haha yeah Jaby is my brother! I know - different names - question is: Who has the real name? haha When it's Dystonia Awareness Week please send us a reminder message Dylan!